THE IMPACT IN GEORGIA
Here are some articles from data collected from the GOAL participants:
Burden of Systemic Lupus Erythematosus on Employment and Work Productivity
A recent study with data provided by our GOAL participants pointed out on the burden of SLE on employment. Our findings indicate that SLE imposes a substantial burden on individuals and burden on society. Major factors that negatively impact work outcomes are fatigue, disease activity, and organ damage. More effective treatments along with coping strategies at the workplace are needed to reduce the burden of SLE on work outcomes.
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The Incidence & Prevalence of SLE
Without a new medication approved for systemic lupus erythematosus (SLE) by the Food and Drug Administration in more than 40 years, there has been a recent flurry of research activity and clinical trials. However, a basic epidemiologic understanding of SLE, which is necessary to understand the full clinical spectrum and population burden, lags behind. Estimates of the incidence and prevalence of SLE in the US have varied widely and are outdated (Table 1). This is likely due to the use of different case definitions, limited sources for case ascertainment, small source populations, and different demographic groups targeted, as well as the protean characteristics of the disease, poor reliability of self-report, lack of reliability in diagnosis and coding in health system databases, and issues related to access to health care by high-risk populations. Estimates for other types of lupus (e.g., primary discoid lupus) are even less well defined.
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Primary Preventive Services SLE
The primary care system has key functions in delivering core medical and preventive care and helping patients to coordinate and integrate care across health care providers. Primary care services have been shown to improve health outcomes and reduce costs. However, Americans receive only half of the recommended primary care services, and those who receive poorer quality primary care have higher mortality than those who receive higher standards of care. Thus, adequate delivery of primary care is becoming a greater priority for U.S. policy makers.
READ MORE
Burden of Systemic Lupus Erythematosus on Employment and Work Productivity
A recent study with data provided by our GOAL participants pointed out on the burden of SLE on employment. Our findings indicate that SLE imposes a substantial burden on individuals and burden on society. Major factors that negatively impact work outcomes are fatigue, disease activity, and organ damage. More effective treatments along with coping strategies at the workplace are needed to reduce the burden of SLE on work outcomes.
READ MORE
The Incidence & Prevalence of SLE
Without a new medication approved for systemic lupus erythematosus (SLE) by the Food and Drug Administration in more than 40 years, there has been a recent flurry of research activity and clinical trials. However, a basic epidemiologic understanding of SLE, which is necessary to understand the full clinical spectrum and population burden, lags behind. Estimates of the incidence and prevalence of SLE in the US have varied widely and are outdated (Table 1). This is likely due to the use of different case definitions, limited sources for case ascertainment, small source populations, and different demographic groups targeted, as well as the protean characteristics of the disease, poor reliability of self-report, lack of reliability in diagnosis and coding in health system databases, and issues related to access to health care by high-risk populations. Estimates for other types of lupus (e.g., primary discoid lupus) are even less well defined.
READ MORE
Primary Preventive Services SLE
The primary care system has key functions in delivering core medical and preventive care and helping patients to coordinate and integrate care across health care providers. Primary care services have been shown to improve health outcomes and reduce costs. However, Americans receive only half of the recommended primary care services, and those who receive poorer quality primary care have higher mortality than those who receive higher standards of care. Thus, adequate delivery of primary care is becoming a greater priority for U.S. policy makers.
READ MORE