PULSE (People Understanding Lupus through Shared Experiences) Study
What is PULSE?
People Understanding Lupus through Shared Experiences (PULSE) is our newest GOAL sub-study that has a specific focus on lupus and cardiovascular disease. We want to explore how experiences and behaviors, in combination with biological factors, influence lupus disease expression especially in relation to heart health. This study involves surveys that ask about your experiences, behaviors, and quality of life, as well as biospecimen collection (blood, urine, and saliva).
Why do we need you?
We want to learn more about people’s experiences living with lupus so that we can understand more about this disease and how to treat it. By joining our study, you will help us develop better treatments and resources that will be accessible, affordable, and tailored to the specific needs of those affected by lupus.
How can you help?
We would like to recruit those who are already part of the GOAL study and have completed the most recent GOAL survey.
What is PULSE?
People Understanding Lupus through Shared Experiences (PULSE) is our newest GOAL sub-study that has a specific focus on lupus and cardiovascular disease. We want to explore how experiences and behaviors, in combination with biological factors, influence lupus disease expression especially in relation to heart health. This study involves surveys that ask about your experiences, behaviors, and quality of life, as well as biospecimen collection (blood, urine, and saliva).
Why do we need you?
We want to learn more about people’s experiences living with lupus so that we can understand more about this disease and how to treat it. By joining our study, you will help us develop better treatments and resources that will be accessible, affordable, and tailored to the specific needs of those affected by lupus.
How can you help?
We would like to recruit those who are already part of the GOAL study and have completed the most recent GOAL survey.
- We will ask you to complete a new survey that asks about your environment, experiences, behaviors, and quality of life living with lupus.
- This survey is a little different than past GOAL surveys because there are more personal and sensitive questions about your past and present experiences, but we still encourage you to answer all the questions as honestly as possible. We want to understand how life events can affect your health.
- The second component of our study involves biospecimen collection. If you would like to participate, we can schedule a time for you to meet with us and donate a sample of your blood.
- You will be compensated for the survey and the blood collection.
- Biospecimen collection also involves collecting saliva samples. After you donate blood, we will send you a saliva collection kit in the mail with instructions.
- We will ask you to choose a typical day and collect a saliva sample 3 times throughout that day. You will need to freeze your samples and mail them back to us.
- Here is a video demonstrating how to use our saliva collection materials:
Contact Us for More Information
If you are interested in participating in the PULSE Study. please fill out the following form and we will contact you with more information. You can also call (404) 251-8832 or email info@lupusingeorgia.org. u
If you are interested in participating in the PULSE Study. please fill out the following form and we will contact you with more information. You can also call (404) 251-8832 or email info@lupusingeorgia.org. u